EMECC@EMECC1

European ME Clinicians Council Bringing European clinicians together to educate, treat and serve people with myalgic encephalomyelitis (ME - also ME/CFS)

 Europe
emecc.org
Joined March 2019
2 Photos and videos
#BRMEC15 15th International Biomedical Research into ME Colloquium begins Wonderful line-up of European/international researchers working together to progress research into #MECFS Happy Young EMERG @YoungEmerg will be handling our social media this week investinme.org/brmec15.shtml
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WHO Regional Director Europe opened #IIMEC18 affirming- "ME is a serious, complex, multi-system physical illness, involving neurological, immune, and metabolic dysfunction" - Dr Hans Kluge @WHO_Europe Press release: investinme.org/IIMER-PR-2026… #mecfs #WHO #InvestInMEresearch #IIMER
Dr Hans Kluge Diector WHO Europe - giving the opening address for the 18th Invest in ME Research International ME Conference 2026 - #IIMEC18

ALT Dr Hans Kluge Diector WHO Europe - giving the opening address for the 18th Invest in ME Research International ME Conference 2026 - #IIMEC18

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Prevalence of EBV, HHV6, HCMV, HAdV, SARS-CoV-2, and Autoantibodies to Type I Interferon in Sputum from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients mdpi.com/3225118 #mdpiviruses via @VirusesMDPI #mecfs #research

Prevalence of EBV, HHV6, HCMV, HAdV, SARS-CoV-2, and Autoantibodies to Type I Interferon in Sputum...

An exhausted antiviral immune response is observed in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-SARS-CoV-2 syndrome, also termed long COVID. In this study, potential...

mdpi.com
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Young EMERG workshop 26-27 May 2025 youngemerg.com/yemerg05.shtm… We have also announced Young EMERG workshop 2026 - now full two-day workshop youngemerg.com/yemerg06.shtm… The future for research into ME #mecfs #research @YoungEmerg @euromeresearch
Poster for the Young EMERG SPARK ME workshop 2025 - on 26-27 May 2025 - arranged and sponsored by UK charity Invest in ME Research

ALT Poster for the Young EMERG SPARK ME workshop 2025 - on 26-27 May 2025 - arranged and sponsored by UK charity Invest in ME Research

Banner image of Hinxton Hall - venue for the Young EMERG SPARK ME worksop 2026 - arranged and funded by UK charity Invest in ME Research

ALT Banner image of Hinxton Hall - venue for the Young EMERG SPARK ME worksop 2026 - arranged and funded by UK charity Invest in ME Research
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From EMERG member Professor David Price et al Identification of soluble biomarkers that associate with distinct manifestations of long COVID nature.com/articles/s41590-0… #mecfs #LongCovid #research

Identification of soluble biomarkers that associate with distinct manifestations of long COVID

Nature Immunology - Gao and colleagues explore soluble biomarkers, immune cell subsets, viral antibody responses and plasma proteomics to better define and understand long COVID in two independent...

nature.com
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Enhorabuena a los compañeros de Islandia de @EMECC1 nueva clínica para pacientes con EM/SFC y Covidpersistente. Se llamará “Clínica de Akureyri”, en honor a esta ciudad, que hace 75 años sufrió una epidemia de EM/SFC que se conoció como la enf. de Akureyri investinme.org/iimer-newslet…
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ICELAND Establishes a Clinic for ME Patients – The AKUREYRI CLINIC investinme.org/iimer-newslet… #mecfs #research @euromeresearch @euromeall #LongCovid #Iceland
An image of Iceland with Icelandic flag and reference to the UK charity Invest in ME Research's news page regarding the opening of a clinic for ME patients in Iceland - https://www.investinme.org/iimer-newslet-240801.shtml

ALT An image of Iceland with Icelandic flag and reference to the UK charity Invest in ME Research's news page regarding the opening of a clinic for ME patients in Iceland - https://www.investinme.org/iimer-newslet-240801.shtml

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Many thanks to @Giada_Da_Ros (President CFS/ME Italian Assoc) for helping EMEA in translation of survey flyer into Italian - europeanmealliance.org/docum… A more refined Italian version of press release & EMEA comment soon europeanmealliance.org/emea-…
European ME Alliance Pan-European ME Patient Survey image depicting EMEA logo and Italian flag with poster marking World Health Day 2024

ALT European ME Alliance Pan-European ME Patient Survey image depicting EMEA logo and Italian flag with poster marking World Health Day 2024
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During our International ME Conference Week we are arranging the @YoungEmerg workshop for early career researchers Join the future for research into ME europeanmeresearch.org/yemer… #research #ECR #mecfs #IMECW2024 @euromeresearch @euromeall @EMECC1
Poster for the Young EMERG research workshop Organised by UK charity Invest in ME Research Young EMERG offers hope for building the future for research into myalgic encephalomyelitis. The Young EMERG ECR events are arranged and funded by UK Charity Invest in ME Research, a founder member of the European ME Alliance, as part of their strategy to energise research into ME by building European networks for researchers, clinicians, patient groups and, now, early career researchers.

ALT Poster for the Young EMERG research workshop Organised by UK charity Invest in ME Research Young EMERG offers hope for building the future for research into myalgic encephalomyelitis. The Young EMERG ECR events are arranged and funded by UK Charity Invest in ME Research, a founder member of the European ME Alliance, as part of their strategy to energise research into ME by building European networks for researchers, clinicians, patient groups and, now, early career researchers.

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16th Annual International ME Conference Registation open for #IIMEC16 investinme.org/IIMEC16.shtml… #mecfs #IMECW2024 #BRMEC13 #SPARKME #YEMERG04 #research #cpd #LongCovid #ClinicalTrials
Banner for 16th International ME Conference organised by UK charity Invest in ME Research Advancing Understanding of ME: Bridging Research and Clinical Treatment

ALT Banner for 16th International ME Conference organised by UK charity Invest in ME Research Advancing Understanding of ME: Bridging Research and Clinical Treatment
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"Advancing Research and Treatment: An Overview of Clinical Trials in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Future Perspectives" Our review on clinical trials in ME is published🥳🌟 #MECFS @euromeresearch @EUROMEALL @Invest_in_ME mdpi.com/2077-0383/13/2/325

Advancing Research and Treatment: An Overview of Clinical Trials in Myalgic Encephalomyelitis/Chr...

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic, debilitating, and multi-faceted illness. Heterogenous onset and clinical presentation with additional comorbidities make it...

mdpi.com
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Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome mdpi.com/2625368 #mdpijcm via @JCM_MDPI #mecfs @euromeall @YoungEmerg

Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex disease characterized by profound fatigue, post-exertional malaise (PEM), and neurocognitive dysfunction. Immune dysregulation...

mdpi.com
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Replying to @TheMECFSNet @NIH @9AM
The charity is proud to be presenting at this important event today to develop the next generation of young and early career researchers for #MECFS #research @YoungEmerg @euromeresearch @EMECC1 @EUROMEALL
Opening slide for Invest in ME Research's presentation to the Symposium for Promoting The Advancement of Research Knowledge in ME/CFS - Washington, USA - 11 December 2023

ALT Opening slide for Invest in ME Research's presentation to the Symposium for Promoting The Advancement of Research Knowledge in ME/CFS - Washington, USA - 11 December 2023
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European ME Alliance open statement to WHO Europe for @WHO's Regional Office Committee Meeting for Europe in Kazakhstan where EMEA received ‘𝗼𝗳𝗳𝗶𝗰𝗶𝗮𝗹 𝗡𝗼𝗻-𝗦𝘁𝗮𝘁𝗲 𝗔𝗰𝘁𝗼𝗿 𝗮𝗰𝗰𝗿𝗲𝗱𝗶𝘁𝗮𝘁𝗶𝗼𝗻’ status europeanmealliance.org/news-… #mecfs #VoiceforMEinEurope
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European ME Alliance is proud to announce that it has received ‘𝗼𝗳𝗳𝗶𝗰𝗶𝗮𝗹 𝗡𝗼𝗻-𝗦𝘁𝗮𝘁𝗲 𝗔𝗰𝘁𝗼𝗿 𝗮𝗰𝗰𝗿𝗲𝗱𝗶𝘁𝗮𝘁𝗶𝗼𝗻’ status from @WHO 's Regional Office for Europe europeanmealliance.org/news-… including our open statement to WHO Europe #mecfs #VoiceforMEinEurope
A picture of advocacy in Europe by European ME Alliance - showing a map of Europe and people in European countries.

ALT A picture of advocacy in Europe by European ME Alliance - showing a map of Europe and people in European countries.

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"..used in research settings to assess effect of an intervention in #MECFS patients on FC, Total Score could be an important outcome measure, reducing number of statistical analyses and spurious findings, thereby increasing interpretability of results" preprints.org/manuscript/202…

Assessing Functional Capacity in ME/CFS: A Patient Informed Questionnaire

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) is an acquired disease with significant morbidity that affects both children and adults. Effective tools to assess functional capacity...

preprints.org
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EMEA will be welcoming the latest country to join the Alliance - Lithuania We hope to be able to help make real progress in understanding and researching the disease there. More details soon. #mecfs #Lithuania
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Anonymous survey, addressed to all ME/CFS patients To be completed in two minutes Thank you very much
European ME Alliance 🇪🇺@EUROMEALL
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A short survey for people with ME conducted by Spanish researchers in the European ME Research Group europeanmealliance.org/me-di… #mecfs @euromeresearch #research #survey #diabetes
A survey being undertaken by EMERG researchers in Spain

ALT A survey being undertaken by EMERG researchers in Spain

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Welcome to new members of the European ME Research Group and Young EMERG - and research update europeanmeresearch.org/emerg… #mecfs #research @YoungEmerg
Dr Sigurveig T Sigurdardottir

ALT Dr Sigurveig T Sigurdardottir

Dr Kristjan Erlendsson

ALT Dr Kristjan Erlendsson

Associate Professor Eva Untersmayr-Elsenhuber

ALT Associate Professor Eva Untersmayr-Elsenhuber

Johanna Rohrhofer

ALT Johanna Rohrhofer

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Check out our new 7-part series that validates and sheds light on one of the most ambiguous aspects of #MECFS, post-exertional malaise/post-exertional symptom exacerbation (#PEM/#PESE). Share it with your medical professionals to help improve health care for #pwME. @OpenMedF
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