Physician determined to mainstream ME/CFS and FM into modern science and medicine
Utah, USA
- Tweets 1,398
- Following 764
- Followers 6,151
- Likes 5,249
Lucinda Bateman retweeted
My heart is united with the suffering of the people of #Ukraine, who have lived in anguish and fear for years. I renew my appeal to put an end to the violence, halt the destruction, and open hearts to dialogue and #peace! I hope that the efforts undertaken in recent days to resume negotiations will bear concrete fruit and make room for diplomacy. Let us #PrayTogether to the Lord that concord may prevail in every conflict throughout the world.
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Today is Severe ME Awareness Day.
Please take a look at this short film if you're unfamiliar with #severeME and how poorly severely affected ME patients are treated. #r4today
dialogues-mecfs.co.uk/films/…
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Lucinda Bateman retweeted
Severe ME awareness day today. Today is also a day of remembrance for those who have died from ME. I have Moderate ME. Sometimes I'm bedbound though during a crash. I also have Fibromyalgia. I was diagnosed in 2023 after seeking a diagnosis for 7 years. My ME got worse this year.
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Lucinda Bateman retweeted
Honoring those who probably wouldn’t be able to read this post, or it would be one of the few things they can do today, on this #SevereMEDay2026. People who don’t have it can’t fathom its direness. I have friends, colleagues, and research participants with severe ME—and I don’t.
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Lucinda Bateman retweeted
Terminó la Copa Mundial de Fútbol 2026. Fue una gran celebración de alegría, emoción y unión entre los pueblos, donde el deporte volvió a demostrar su capacidad para acercar a las naciones.
Felicidades a todas y todos los mexicanos por hacer de México la mejor sede y a nuestra Selección Nacional por el gran papel que desempeñó, poniendo en alto el nombre de nuestro país con entrega, talento y orgullo.
Felicidades a España por conquistar merecidamente el campeonato.
Los tres países anfitriones —Canadá, Estados Unidos y México— demostramos que, cuando trabajamos unidos, somos capaces de hacer realidad grandes proyectos y de dejar un legado de cooperación, amistad y esperanza para el mundo.
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Lucinda Bateman retweeted
NINDS Multi-System Disorders Workshop: Registration is open for the Sept. 23-24 NIH hybrid workshop on advancing research and care across infection-associated conditions, neuroimmune dysfunction, autonomic dysfunction, genetics, and related disorders. events.ninds.nih.gov/event/3…
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Lucinda Bateman retweeted
Clayton Powers, DPT, @BatemanHorne : After nearly 9 years at University of Utah Health, Clayton is transitioning to Director of Education and Strategic Partnerships at Bateman Horne. linkedin.com/posts/claytonpo…
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Lucinda Bateman retweeted
Scott Hugo, 25+ patient advocates & @MEActNet filed an ethics complaint over WIRED's Long COVID article. Learn why the Long COVID & ME/CFS communities are concerned, read the complaint & sign the petition:
mecfssandiego.com/mecfs-advo…
ALT Advocacy alert about WIRED's Long COVID article, urging support for Scott Hugo and #MEAction's ethics complaint with calls to read the complaint and sign a petition.
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Lucinda Bateman retweeted
Education matters. Community matters too.
Explore BHC's free:
• Support Groups
• Outreach Event Recaps
• "Coffee" with a Clinician recordings
Join our mailing list for future events & resources.
📩 Sign up: bit.ly/3POhK4d
#HelpThatDoesntWait
ALT Outreach Events poster: four people seated at a table with laptops; tagline Help that doesn't wait, promoting community education.
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Lucinda Bateman retweeted
HELP THAT DOESN'T WAIT
bit.ly/4oKuFkY
Research is building toward more effective treatments and a cure. In the meantime, people need support now.
Throughout July, we'll be sharing free BHC resources for ME/CFS, Long COVID, fibromyalgia, and related conditions.
ALT Bateman Horne Center logo with bold message 'Help that doesn't wait', open-book icon with flying birds and dotted flight path
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Lucinda Bateman retweeted
Join us online this July!
Tuesday, July 7: Support Group – Navigating Work Loss & Financial Stress
Wednesday, July 8: "Coffee" with a Clinician – Sleep Challenges
Tuesday, July 21: Support Group – Boundaries & Needs While Chronically Ill
Register here: batemanhornecenter.org/event…
ALT July support events: 7 - work loss & financial stress; 8 - clinician coffee on sleep; 21 - boundaries & self-care
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Lucinda Bateman retweeted
Our most-viewed YouTube video last month is worth another look.
"What is ME/CFS?" breaks down the core symptoms of ME/CFS, including PEM, cognitive impairment, unrefreshing sleep, and orthostatic intolerance.
Watch now: bit.ly/4fNwHhG
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Lucinda Bateman retweeted
Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years.
Our latest blog explains:
• Tilt Table Tests
• Active Stand Tests
• NASA Lean Tests
…and why accessible testing matters.
Read more: bit.ly/49ZOOgw
ALT Arm with blood pressure cuff and stethoscope; banner: new blog post about orthostatic intolerance testing methods.
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Lucinda Bateman retweeted
@CortJohnson @OpenMedF OMF-Funded Moreau Lab ME/CFS research links low membrane SMPDL3B & depleted sphingolipids/ceramides to immune dysfunction, PEM, kidney-related blood volume problems, & the renin-aldosterone paradox. OMF plans related med trials. healthrising.org/blog/2026/0…
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Lucinda Bateman retweeted
Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s43856-0…
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Lucinda Bateman retweeted
Thanks for being an ally for all of us who have been dismissed, gaslit, and treated as delusional in today’s healthcare settings. Please listen to us and give us the opportunity to represent ourselves and our children on committees instead of cherry-picking mildly affected individuals or parents of mildly affected children. Here is my article, if you would like to hear directly from the perspective of a parent of a severely affected child with Long COVID.
thesicktimes.org/2026/01/13/…
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Lucinda Bateman retweeted
I agree with this. I would add that #BrainHealth is #MentalHealth and that addressing underlying chronic illness and its metabolic, autoimmune, immunologic and environmental components is the key to improving mental health. For many people, it's not psychotherapy or SSRIs! 🧠
The artificial divide we have drawn between mental and physical health is the largest mistake in medicine.
Maintaining this divide creates stigma and worse care for all.
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