Less Survivable Cancers Taskforce@LessSurvivable

We are the Less Survivable Cancers Taskforce, made up of: @ActionHeartburn, @BrainTumourOrg @GutsCharityUK, @LiverTrust, @Roy_Castle_Lung and @PancreaticCanUK.

 United Kingdom
Based in United Kingdom
lesssurvivablecancers.org.uk…
Joined March 2017
The Less Survivable Cancers Taskforce (LSCT) welcomes the announcement of the reformed National Cancer Board and its new co-chairs Anita Charlesworth and Mark Cubbon. Read more below 👇 lnkd.in/e8B7CkhG
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The Less Survivable Cancers Taskforce (LSCT) welcomes the appointment of Dr Sara Stoneham as the National Institute for Health and Care Research’s new Specialty Lead for Rare Cancers. Read more below 👇 lesssurvivablecancers.org.uk…
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Yesterday, the APPG on Less Survivable Cancers met to discuss how to drive innovation in treating rare cancers. We're grateful to Minister @SharonHodgsonMP for joining to hear our thoughts and to @JoshFG MP for chairing.
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Two fantastic charities have joined our coalition to improve outcomes for those with less survivable cancers (LSCs). Brain Tumour Research @braintumourrsch focuses on finding a cure for all brain tumours and Tenovus Cancer Care @tenovuscancer works in Wales on three three LSCs.
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APPG on Less Survivable Cancers met re. the Rare Cancers Act's National Lead for Rare Cancers and what they will need for success. We will write to ministers with our recommendations. Next meeting, re. orphan drugs, in July. Thank you to our chair @PauletteHamilto
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We ask the next Welsh Government to take urgent action and commit to a specific focus on improving outcomes and doubling survival rates for the less survivable cancers.
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We’re calling on the next Scottish Government to close the deadly cancer gap. Less survivable cancers account for 1 in 4 diagnoses in Scotland, but average 5-year survival is just 16%. It’s time to improve outcomes, address research gaps and prioritise early diagnosis for LSCs.
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The Rare Cancers Act 2026 received Royal Assent on Friday - a major milestone for people affected by less survivable cancers. The Taskforce will continue working with government and partners across the UK to ensure this Act delivers real change.
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Following the AGM, the APPG on Less Survivable Cancers held a spotlight session on treatment delays, exploring the systemic barriers patients face in accessing timely treatment, as well as the changes needed to improve access and outcomes.
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This week, the APPG on Less Survivable Cancers held its AGM. We're delighted to announce the election of Chair @PauletteHamilto, Vice-Chair @cammaynard, and Officers - @danielmgmoylan and @JoshFG. The APPG will continue to work to improve outcomes for these cancers.
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Yesterday, the cancer APPGs met with Minister @AshleyDalton_MP to discuss the Cancer Plan. The APPG on Less Survivable Cancers looks forward to continuing to work closely with the Minister and her team to improve outcomes for these cancers. 👇 linkedin.com/feed/update/urn…
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Earlier this month, the Government published the National Cancer Plan for England. We welcome the plan and are committed to working together to ensure it delivers for people affected by cancer. #OneCancerVoice
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Oesophageal cancer is the seventh most common cause of cancer death in the UK, and one of the six less survivable cancers. Visit actionagainstheartburn.org.u… to find out more. @ActionHeartburn #OesophagealCancerAwarenessMonth
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Read below a statement from @CliveJonesMP, Member of the APPG on Less Survivable Cancers, following the publication of the National Cancer Plan.
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The Less Survivable Cancers Taskforce warmly welcomes the publication of the National Cancer Plan and the ambition it sets out to transform cancer outcomes in England. Read our full response 👇🔗 shorturl.at/2JjBX
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Last week, during #LessSurvivableCancersAwarenessWeek, peers from across the House of Lords backed the Rare Cancers Bill. The Bill could boost research, trials and innovation, with a national strategy. A vital step forward.
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Read the facts.👇 It's this simple the research gap is costing lives. Contact your MP today and help us #CloseTheResearchGap.
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This week, we met with @jenni_minto MSP, Minister for Public Health and Women's Health, to discuss the key actions needed in Scotland to drive progress for less survivable cancers. It was great to hear the Minister's ongoing support for improving outcomes for these cancers.
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Thank you Lord Moylan, Officer of the APPG on Less Survivable Cancers, for calling on the Government to urgently address the major barriers hindering research into less survivable cancers. For too long, these cancers have been left behind. Now it's time to #CloseTheResearchGap
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Huge thanks to @DelythJewellAM MS for hosting yesterday's drop-in event in the Senedd for Less Survivable Cancers Awareness Week. It's time to #CloseTheResearchGap. Encourage your local MS to show their support today 👇 lesssurvivablecancers.org.uk…
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We welcomed @JGriffithsLab MS's 90 second statement yesterday at the Senedd, outlining the need to improve outcomes for less survivable cancers in Wales.
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On Tuesday, we held a drop-in event at the Scottish Parliament, kindly sponsored by @jackiebmsp. Our message was clear: while progress has been made, research funding is needed in Scotland to #CloseTheResearchGap. Thank you to everyone that dropped in and supported the event.
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The world's first breath test for pancreatic cancer, led by @profgeorgehanna through the @IC_VAPOR_Study could revolutionise earlier diagnosis and save thousands of lives. Let's #closetheresearchgap to support more pioneering research like this. #lesssurvivablecancers
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It's time to #CloseTheResearchGap. We're on a mission with the support of MPs from across the country to close the research gap and improve the survivability of the least survivable cancers.
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Great to see #CloseTheResearchGap getting media coverage. Check out one of the main stories here: dailymail.co.uk/wires/pa/art…
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The stats are clear. We're calling for change. It's time to close #CloseTheResearchGap. lesssurvivablecancers.org.uk…
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@PauletteHamilto MP (Chair of the Less Survivable Cancers APPG) is supporting the Less Survivable Cancers Awareness Week this week. Wearing a teal lab coat in support of closing the research gap for less survivable cancers. #CloseTheResearchGap
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As part of #LessSurvivableCancersAwarenessWeek, we were in Westminster standing for the stats. Less survivable cancers receive just 19% of research funding, despite causing 40% of cancer deaths. 📣 Contact your MP today. lesssurvivablecancers.org.uk… #CloseTheResearchGap
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Tomorrow we will be revealing startling figures associated with the Less Survivable Cancers research gap. Be ready, use your voice to share, and take action. #CloseTheResearchGap
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Today marks the first day of #LessSurvivableCancersAwarenessWeek. This week, we’ll be sharing shocking figures on the research gap, encouraging you to take action, and showcasing what research can do for Less Survivable Cancers. Starting with BEST4 👇
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Next week we’ll reveal new data exposing the research gap facing less survivable cancers. This Less Survivable Cancers Awareness Week, 12th-16th January, we need your help sharing these figures and influencing policy change that will #CloseTheResearchGap
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We welcome Minister @AshleyDalton_MP's remarks yesterday that less survivable cancers will be a key focus in the National Cancer Plan and that her department is considering #APPGonLessSurvivableCancers' inquiry recommendations. A positive step forward for these deadly cancers.
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Thank you @patrick_hurley for sharing his own personal experiences and for highlighting the devastating impact of #lesssurvivablecancers on individuals and their loved ones in Parliament yesterday.
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Huge thanks to @CliveJonesMP for sponsoring yesterday's debate in Westminster, and for calling for faster diagnosis for #LessSurvivableCancers. Early detection and faster diagnosis are vital to saving lives and driving better outcomes for those affected by these deadly cancers.
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Save the Date! Less Survivable Cancers Awareness Week runs Jan 12–16, 2026. We’re highlighting the research gap facing lung, brain, oesophageal, pancreatic, stomach & liver cancers. Join the Taskforce, email your MP, and push for urgent change. More info soon.#CloseTheResearchGap
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Yesterday, the APPG on Less Survivable Cancers convened a joint meeting with other cancer APPGs. Thank you to Chair of the APPG on Less Survivable cancers Dr @PauletteHamilto MP for skilfully chairing the meeting, and Vice-Chair @cammaynard MP for his powerful contribution.
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October is #LiverCancerAwarenessMonth. 17 people in the UK are diagnosed with #LiverCancer every day. Early diagnosis saves lives, so this month is an important opportunity to raise awareness. Find out how to get involved @LiverTrust 👇 livercanceruk.org/liver-canc…
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On behalf of the APPG on Less Survivable Cancers, please find below its latest newsletter. 📰Visit the APPG website for further information and updates.🔗➡️shorturl.at/xgdlH
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"Only then can we improve survival rates for people facing these devastating diseases." Read our full statement on why we're joining the #OneCancerVoice in urging the government to deliver a National Cancer Plan that meets our collective six tests here ⬇️shorturl.at/LQfzK
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The recent Less Survivable Cancers APPG report highlighted the difficulty in diagnosing and detecting less survivable cancers early. Read our recommendations to the Government on addressing this and more in the full report here: shorturl.at/c3c4Z
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August is Gastroparesis Awareness Month, a condition impacting the stomach. A side effect of many of the cancers we represent, it is important to raise awareness about this condition. Head to @GutsCharityUK and their website to learn more ➡ shorturl.at/toVKk
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The past few weeks have been busy for the Taskforce with key policy developments occurring and a significant positive win in Wales. Throughout it all we remain dedicated to continuing our work to advocate for better outcomes for people with less survivable cancers #lesssurvivable
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This year the APPG on Less Survivable Cancers produced a powerful report looking into earlier detection and faster diagnosis. It contains key recommendations to the Government on improving outcomes. To read the full report click here ➡️lesssurvivablecancers.org.uk…
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Only 16% of people diagnosed with some of the less survivable cancers survive beyond 5 years. The #RareCancersBill is a unique opportunity to tackle this and more. We are pleased to have supported this Bill throughout its journey and will continue to do so as it progresses.
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As mentioned by @GregoryStafford MP, only 16% people diagnosed with some of the less survivable cancers survive beyond 5 years, in comparison to over 55% for more common cancers. The #RareCancersBill is a unique opportunity to improve survival rates.
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Big thanks to @GregoryStafford MP for highlighting the importance of the Rare Cancers Bill in improving earlier diagnosis for the less survivable cancers. #RareCancersBill
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The Taskforce supports the Rare Cancers Bill. The Bill reaches its 3rd reading in Parliament tomorrow, Friday 12 July and we need at least 40 MPs in Westminster to ensure it progresses. 👉 We are calling on all MPs to attend and support the Bill.
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For the 90,000 people diagnosed each year with less survivable cancers, the 10-Year Plan’s focus on early diagnosis is welcome, but success will depend on the detail. Read @PauletteHamilto's response as Chair of the APPG on Less Survivable Cancers ➡️shorturl.at/rhP72
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The focus on early diagnosis and detection in the 10-Year Health Plan for England is a welcome step. Now what we really need to see is how this will deliver for people with less survivable cancers in the National Cancer Plan. See full statement ➡️shorturl.at/2ytEr
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