Earlier this year, my wife spontaneously discovered she had a cavernous malformation deep in her thalamus that had been hemorrhaging asymptomatically.
We consulted with doctors across the country for the best treatment. Due to the extremely sensitive location of her pathology in the thalamus, the doctors recommended to do nothing and just observe because surgery risk was very high.
The trade off, however, was that if not operated, this grouping of blood vessels deep in her brain could hemorrhage and lead to terminal damage.
When we asked a neurosurgeon in LA what he would do, he replied: "Just hope for the best".
Through a mutual friend, we learned about
@BillAckman's daughter situation earlier this year and re-assessed the risk-benefit of a deep brain surgery.
Although the details were vague, we understood Lucy's hemorrhage could have been caused by the the same or very similar situation as my wife's.
Through various referrals, we landed with a modern day DaVinci of brain surgery Dr. Michael Lawton
@mtlawton at the Barrow Brain and Spine Institute (
@BarrowNeuro) in Phoenix, Arizona.
Dr. Lawton and his team were the only ones with the knowledge and skillset (having completed over 1,000+ similar surgeries) to have my wife's hemorrhaging pathology removed with the best chances of no terminal impairment from surgery.
On June 14, the surgery was completed successfully.
Here is a published video of the surgery performed by
@mtlawton:
x.com/mtlawton/status/206982…
Had it not been for appreciating
@BillAckman's situation and the unfortunate circumstances it resulted for Lucy, we perhaps not have proceeded with surgery and, unknowingly, put my wife in similar path to a sudden hemorrhage.
In Judaism, the highest act is that of pikuach nefesh, "saving a life". Indirectly, Lucy's story may have saved my wife's live. Thank you.
And after observing my wife's recovery, I'm confident that Lucy will recover in full with time. The brain can work wonders. Sending you all the best.
--
The
@BarrowNeuro institute opened its doors 65 years ago, and was established by Dr. John Green, whose wife had a brain tumor complication that led to her death.
Had it not been for Barrow Institute, delicate brain surgeries would be out of the realm of possibilities.
It's hard to ignore the parallels of Bill's decision to establish the AOI today. I'm sure will look back 65 years from today and count the many lives its saved.
The brain remains a mysterious frontier.
Organizations, private companies and team's like these are the pioneers that continue to push brain research and technology forward.
In 5-10 years, the brain will have its Apollo moment.
Transventricular surgery is a combination of subarachnoid dissection thru tight cisterns like interhemispheric fissure + open waters like lateral ventricles, arriving at the deepest of targets w/hardly any brain transgression. Here, some transchoroidal work was needed to reach anteromedial pulvinar from above as fornix bent laterally on its course to atrium…