Have you ever wondered what the difference is between post-exertional malaise (PEM) & post-exertional symptom exacerbation (PESE) in myalgic encephalomyelitis (M.E.)? @sunsopeningband explains it in a clear and elegant nutshell.

Petition to make the ME/CFS learning modules mandatory for NHS staff ⬇️ c.org/8YvS2vFWMt

Now tell me again like I'm a 4 year old (who wants to someday be a live adult). How is it that excess deaths in the US are STILL 10% higher than before the Covid pandemic AND we should not even bother wearing a $1.50 N95 mask because Covid is over?

Just a reminder that Republicans in Congress cynically set up the Big Ugly Bill so that the worst of their health care cuts and premium increases will kick in next year, AFTER the November midterm elections. nytimes.com/2026/09/23/us/po…

Dear @RACGPPresident, I support the call to immediately withdraw the HANDI guide entry titled “Incremental physical activity for chronic fatigue syndrome (CFS) / myalgic encephalomyelitis (ME)”. Stop The Harm. Stop Graded Exercise Therapy for ME in Australia @RACGP.

This 36 year old developed LongCOVID and a medical practitioner recommended she try a blood detox (aphresis) to help her recover, but during the procedure, the internal jugular catheter punctured her heart which put her into cardiac arrest, requiring emergency open heart surgery.

Watch each talk from this year's Community Symposium, in our youtube playlist now! #MECFS26 piped.video/playlist?list=PL…

RECOVER have put out how they chose the biomarkers for their Long COVID trials and it's some of the most uninspired and methodologically questionable work I've seen in this space. They've got over a billion in funding. And what they did was go through other people's studies, look for blood markers that came up abnormal in at least two of them, and use that as their list. So we've got 82 markers, and honestly the reason most of them are in there is because they're cheap to measure, not because they're the right markers. The studies they took them from are mostly small and have most of the limitations Long COVID studies always have. Heterogeneous patient populations, no subgrouping, poor inclusion criteria, no mapping for severity, etc etc. Plus huge batch effects across all the different studies. You can't just pool that together and call it evidence. It gets worse. They only prioritised studies that compared patients to people who'd never had COVID. Researchers from major studies have already pointed out that when you do that, you can't separate Long COVID from leftover inflammation from the infection. So their filter pushed out the better designed studies. And complement, one of the main signals coming out of the larger studies, isn't on their list at all. Not one complement protein in 82 markers. Then there's nothing on their page about how they'll deal with batch effects in their own trials either. This stuff should be centralised, not left to individual sites to run assays. They also removed any markers that weren't "feasible" to measure at trial sites. That's just not true. You can do almost anything nowadays with specialist tubes. RNA tubes, DNA tubes. Process serum and plasma on site and ship it. Isolate PBMCs on site, freeze them and send them on dry ice. All of this exists already. They could have done it for everything they dropped. They had a billion. Long COVID isn't one thing, we all know there are subgroups. Instead they're comparing people with Long COVID to healthy controls on average, which just washes out the differences between us. RECOVER are making ad hoc decisions without thinking them through critically, because they have no skin in the game. It's poor, half baked decisions with zero thought in them, again and again, just to look like they're doing something. They're chasing their tail, and in doing so they're wasting all of our money. They desperately need to take a step back and create a cohesive long term strategy. This is just going to lead to another year, and another press conference saying sorry, our work last year was useless and it failed.

It’s been happening at fraternities everywhere for decades

When I got sexually assaulted in college the only option Bard gave me was a restraining order type thing where I would have had to tell him my entire schedule so he could avoid me, thereby letting him know where I was at all times

This is DA Matthew Van Houten. He and his office determined the 7 rapists could walk free without criminal charge.

I have just emailed the YouTube of George Monbiot on Natasha Devon’s LBC show to my MP after his interest and excellent response 👇 “It’s one of the worst illnesses you can have” #ME

Staggering staff losses at the CDC have left the agency "zombified'—and unable to address a series of escalating health crises motherjones.com/politics/202…

Washington Post confirms @propublica.org's reporting that the FBI shuttered a pay-to-play investigation into Susan Collins after Trump took over last year. #MEpolitics

George Monbiot talking about #MECFS on @LBC with Natasha Devon earlier. This clip is from his closing comments, which I thought were very powerful. Actually, I burst into tears 😭💙 #MyalgicEncephalomyelitis #GreatestMEdicalScandal #LongCovid

Thanks Adam. It's so good that ME/CFS is getting this coverage. It's such a long term, desperate situation for the hundreds of thousands of people, struggling everyday in their own way. 💙

Full interview (9 mins): piped.video/H2rRf_f2hJs George’s recent article theguardian.com/commentisfre…

Symptoms are “horrible” and severe cases are a “living nightmare.” George Monbiot speaks to Natasha Devon on LBC about ME/CFS, it’s long history of being dismissed and psychologised, and the role of governments and insurers.

Trump FCC cutting INTERNET 🫪 For over 100,000 PUBLIC SCHOOL AND LIBRARIES 😡😡😡😡😡😡 Communities depend heavily on Library internet for job applicants and school research for underprivileged students npr.org/2026/07/10/nx-s1-587…

My dad didn't mask during an outing with his friends & brought COVID home in 2023. I would never recover from that infection. It's been over 3 years & I am still bedbound 80-90% of each day. My dad died of a cardiac arrest just a few months later. This is why we still mask.

Side note: @CortDoesScience only has 79 followers right now. She does amazing work. Definitely worth a follow. :)