TX Rare is dedicated to improving access and health outcomes for nearly 3 million Texas #raredisease patients through education and advocacy.
Austin, Texas
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Our Founder & President,
@khrystalkdavis
took a strong position against PBMs in her op-ed calling for reform. Since PBMs emerged, patients face increasing barriers to access and pay more out of pocket for the medications they need. bit.ly/3Gsb3LK
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Learn how the #PBM business model is misaligned between the interests of the #PBMs and the stakeholders they claim to serve. drugstorenews.com/reforming-…
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There is an alarming shortage of some injectable drugs for #cancer and other life-threatening diseases, the result of misdirected government policies. It’s time for #340B reform. Put patients first. is.gd/Bwte7J
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“Earlier this month, Grassley told Reuters the #PBM system was ‘an opaque operation. Transparency brings accountability, and there’s no accountability.’” is.gd/j0vFVu
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Patient advocates are sharing their concerns with Congress on how the #340B program needs to be reformed. news.bloomberglaw.com/pharma…
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Tx faces significant lost therapies, innovation and 54,000+ #biopharma jobs under drug #pricecontrols bill from @RepRichardNeal @FrankPallone @repdavidscott. Bill would hurt patient access & care. More at: weworkforhealth.org/vital-tr….
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A group of US Senators is seeking information about how the #340B program can be reformed. More here: americanactionforum.org/week…
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#PBM compensation and the list price of a medicine create an incentive for #PBMs to prefer higher list prices. Delinking this compensation arrangement could save an estimated $39.9 billion over a 10-year period. is.gd/KE21tN
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A big thank you to our own Senator @JohnCornyn for joining with the 24 cosponsors of the #MCED Screening Coverage Act to create a pathway for early cancer detection for Texans on Medicare.
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Patients should benefit from negotiated drug discounts. Right now, only #PBMs benefit – and this overcharging must stop. We urge @WaysMeansCmte @WaysandMeansGOP to fix this. Help patients save at the pharmacy counter with this #PBMreform.
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Lean how the #340B program is potentially and unnecessarily encouraging the purchase of higher-priced prescription meds, which may inflate costs for patients. is.gd/qx1QhG
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Drug discounts that benefit only #PBMs should be shared with patients. We hope this important #PBMreform is top of mind for @SenFinance members as they discuss #PBM accountability and PBM overcharging of patients. Thank you, Sen. @JohnCornyn for your attention to this issue.
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Drug discounts that benefit only #PBMs should be shared with patients. We hope this important #PBMreform is top of mind for @SenFinance members as they discuss #PBM accountability and PBM overcharging of patients. Thank you, Sen. @JohnCronyn for your attention to this issue.
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Stay up to date on the dozens of #PBM bills Congress is considering regarding #drugpricing and #PBMreform. natlawreview.com/article/pen…
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Learn why congressional oversight of the troubled #340B program is needed in order to help vulnerable patients. reuters.com/legal/litigation…
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A bipartisan US Senate #340B working group wants to ensure the program is functioning as it should. healthleadersmedia.com/reven…
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De-linking the compensation of #PBMs from a drug’s price is key to meaningful #PBMreform. Learn more here about the #PBMAct, which seeks to do just this. nbc16.com/news/local/legisla…
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Learn about the misaligned incentives regarding the role of #PBMs, the massive corporate middlemen in the drug supply chain. “Incentives” = profit-making opportunities for the largest PBMs. natlawreview.com/article/mid…
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.@VitalTransform study shows #GovernmentMandatedDrugPrices would result in 68% reduction in new FDA-approved medicines. Over 10 years, that equals 237 new therapies never making it to market. is.gd/Zctkrq
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To lower drug costs for seniors and taxpayers, Congress must work to delink #PBMcompensation from #druprices. We ask @JohnCornyn and @SenTedCruz to please cosponsor the #PBMAct. is.gd/ubeVuw
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500+ organizations nationwide signed onto a letter urging Congress to pass the #MCEDAct this year, which would give seniors access to life-saving multi-cancer early detection (#MCED) tests. @SenTedCruz @JohnCornyn bit.ly/3qZBDc5
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