All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
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1/ We will add here links to resources for workers and stakeholders on #WorkingWithLongCovid some we were involved in.
These are mainly U.K. but some have transferability to other countries. Please share and tag us to other resources 🐝 #LongCovid
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WorkingAndNotWorkingWithLongCovid retweeted
I mask .. I'm not living in denial or pretending it's a cold.
#YallMasking #WearAMask #MaskUp
#CovidIsNotOver #CovidIsntOver #CovidIsIAirborne #StopLongCovid #BringBackMasks #KeepMasksInHealthcare #DoNoHarm
ALT I mask .. I'm not living in denial or pretending it's a cold.
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The Government's Find-a-job website currently has 110,505 jobs available across GB. Of those 12,361 are Disability confident jobs. Stephen Timms has regularly told disabled people they can work from home. Currently there are 36 remote jobs available that are disability confident. Of those only 9 are part-time. 20-25% of the working age population are disabled.
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theguardian.com/commentisfre…
Many thanks George Monbiot @guardian for such a bold & clear article & for being on the right side of history again. I hope your call for a public inquiry gains traction. As a carer for my 19yo who has very severe ME, I hope this happens in my lifetime.
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Cutting PIP would only increase pressure on other services, MPs warn minister
#PIP #DWP #TimmsReview
@CommonsWorkPen
disabilitynewsservice.com/cu…
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WorkingAndNotWorkingWithLongCovid retweeted
Morning folks! Starting regular teaching this week after a 4 year #LongCovid hiatus 😱
What do you recommend as a good anti-Covid protocol? Masks, CPC mouth wash after, what else should I be doing to reduce chances of getting Covid?
Thanks! 🙏
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#Pacing & #EnergyConservation approaches where needed to manage essential everyday daily activities of living can come with considerable extra financial costs for chronically ill and #DisabledPeople
So #Benefits eg #PIP can support these extra costs.
#DWP
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WorkingAndNotWorkingWithLongCovid retweeted
This sentence in NHS Scotland’s new IPC guidance is a damning illustration of the sheer incompetence & ignorance of those who wrote it:
“RPE should never be worn by an infectious person as the respirator filters incoming air & not the air being expelled by the wearer”
❌ WRONG!
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A cross-party committee of MPs has warned the government against using the Timms Review to cut disabled people’s access to personal independence payment, which it said would only increase pressure on other services.
#PIP #DWP #TimmsReview
disabilitynewsservice.com/cu…
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A disabled MP has revealed how he faced discrimination twice in less than 24 hours after arriving in Brighton for his party’s annual conference this week.
#LDConf #LibDems #Brighton
disabilitynewsservice.com/di…
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Thank you, @ProjectECHO @LongCOVIDWebCA, for hosting my talk today. What a productive case discussion covering medical gaslighting, picking apart PEM triggers and rolling #PEM, addressing dysautonomia and MCAS, roles for exertional testing, and other valuable topics.
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does anyone know anyone who used to be on here and maybe not anymore, whos doing better? there was so many on here early 2020-22 so many i can remember names but sadly dont see posts for a long time, be good to hear positive stories must be 100 ppl i can remember who have gone.
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1/2 Please follow us on socials
Following our social media channels is the easiest way to keep up-to-date with all the latest ME/CFS and Long Covid news, research announcements and charity updates
Click here to find all our social URLs: linktr.ee/measocials
ALT IMAGE DESCRIPTION: A follow us on social media image with the ME Association's logo and icons of socials.
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WorkingAndNotWorkingWithLongCovid retweeted
I am back to my account! 🎉 My account was hacked for the past few days. No, I didn't buy a Porsche using cryptocurrency, which is what the hackers posted from my account. 😂 Thanks to everyone who reached out and @X support team for getting me back here. 🙏
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WorkingAndNotWorkingWithLongCovid retweeted
For every 10 SA600 units sold in the UK, we donate one to The Corsi-Rosenthal Foundation UK - who put air cleaners into schools that need them.
Equip your space. Help equip a classroom.
Learn more: smartairfilters.co.uk/pages/…
#CleanAir #SmartAir #AirPurifier
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WorkingAndNotWorkingWithLongCovid retweeted
Not a normal-appearing post from Dr. Blitshteyn’s account. Looks like it’s been hacked. Ugh.
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#ICYMI the questionnaire is still open for responses! You're welcome to:
* audio-record responses and submit them via the online form,
* type responses in an online form ('standard' or Easy Read)
* type in a Word Document version ('standard' or Easy Read)
#Disability #FreeTime
Interested in joining group discussions / focus groups about rest, free time and disability this autumn? Please consider sending an email to ioana.chis[at]glasgow.ac.uk, so you can be sent a list of dates and times later in the year.
#DisabledTwitter #FreeTime
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This is the least surprising news to anyone who has been looking after people and paying attention for the last 6 years.
BUT I am very glad journal articles like this are being published finally
POTS identified in nearly two-thirds of Long COVID patients
'Published in Journal of American Heart Association..study is believed to be the first to look at autonomic symptoms, heart rate response, inflammatory markers & autoantibodies in people w/LC'
news-medical.net/news/202609…
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A reminder there are almost half a million of publications on Covid and #LongCovid. They are two of the most studied disease entities in the history of medicine. Long Covid research stemmed from examining the long-term effects of SARS-CoV-2 infection. This is a factual reality
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Hi @UKHSA, will you and @NHSEngland be sharing similar advice this autumn?
Many thanks!
#COVID19:
🟢 Prevent yourself from getting sick
🟢 Stay protected, especially if you are at higher risk of severe illness
🟢 Prevent spreading it to others if you do get sick
ALT Tips to prevent COVID-19: wash hands frequently, wear masks in crowds, improve ventilation, and get vaccinated.
ALT Guidelines to prevent spreading COVID-19 when sick include staying home, wearing a mask, covering coughs, frequent handwashing, and improving ventilation.
ALT Advice for those at higher risk of severe COVID-19: get vaccinated, wash hands frequently, wear masks in crowds, and improve ventilation indoors.
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New government research has exposed misleading calls by leading Conservative and Reform UK figures who have repeatedly claimed that assessments carried out remotely are more likely to lead to a successful claim for disability benefits.
disabilitynewsservice.com/go…
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