Just got my blood drawn for multiomics from
@ChronicleBioAI ! This futuristic company is using long-read genome sequencing (from
@nanopore ), transcriptomics, proteomics, and metabolomics to build an AI foundation model for rare and complex diseases, like
#EhlersDanlosSyndrome and
#POTS. I just want to thank the team and give a shoutout to
@fidjissimo for putting this together. Fidji is one of the most amazing visionary leaders in the entire tech space. Motivated by her own health struggles, put together a new company doing what I have been dreaming someone would do since my hackathon in 2019. It’s cool to be working with all star research scientists like
@CortDoesScience as well.
Interestingly, all of this became possible because I met
@gdb / Greg Brockman, president and cofounder of OpenAI, at an EDS conference at GitHub, hosted by the nonprofit I work with,
@Research2People . Greg pleasantly surprised everyone and showed up unannounced with his wife, who has EDS like me. After talking with them for a while, I was introduced to Fidji by email. Fidji introduced me to her people, who I got to know and respect, and now I am proudly working with ChronicleBio to do what I have been dreaming of ever since starting with Research to the People, where my multiomics journey began and changed my life. This now is the next level - far more ambitious than anything before.
I have to say, ChronicleBio is doing the most cutting edge data generation in the entire space, and I am so happy to be a part of this. Thank you ChronicleBio! Today is a good day!
#EDS #EhlersDanlos #MECFS #MCAS #RareDisease