Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Amsterdamned
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Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
With ME 37 years (32 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Vice-Dean: Research and Postgraduate Students, Faculty of Science, Stellenbosch Univ; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #dismantleisrael
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Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Myalgic Encephalomyelitis ME + POTS 39 yrs
Donor to @mecfsbiobank for 10 years & @DecodeMEstudy
Please watch dialogues-mecfs.co.uk/videos
#pwME
ex-filmmaker, home & bedbound due to complex chronic illnesses, mcas, cci, pots, sfn, fq & flagyl toxicity, longlyme, longpathogens, longsomething, longlist
31y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
ME/CFS | Long COVID | IACC | bhanlon15.bsky.social
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruce.bsk…
Research Intelligence Analyst | Hardware, Optics & Structural Systems. Deep research, rigorous testing, behavior analysis.
Some of us notice things and can’t keep quiet about them. Sharing thoughts, not answers—on politics, social issues and being human. Speaking the unspoken.
Censored, hacked, shadow-banned, deplatformed, starting over again. Common Cents Medicine coming to a space near you!
✍️ Healthcare Writer | M.Pharm
💊 Pharma • Hospitals • Health Brands
🔎 SEO • Patient Education • Medical Content
📩 Let's discuss your project today now
Register für ME Schwer- und Schwerstbetroffene für Studienteilnahmen im Rahmen von Hausbesuchen in DE, AT & CH.
Registrierung, Website & Kurzversion s. Links!
HERITAGE is a UK research study on Long Covid & ME/CFS. Led with patients, studying care models, outcomes & costs to improve services nationwide. NIHR funded.
legally in drugs. activism Burnout.
born 331ppm. Woke up in Athropocene.
mathmatician, climate activist, queer, neurodivers
@antonilai.bsky.social
🔎 Search this profile for topic info. Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice.
Minister of State for Finance, Planning and Economic Development (Micro-Finance), Republic of Uganda.
Film & training collective.
Working on a film about disability and activism.
Last film Radical Resilience:
Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
What's worse than an apocalypse? slow-moving 1
ON tagline: Infection Promotion
Gulag w/ MALLS
Monsters rule over us, on be1/2 of monsters-Solnit
#SUGA #지민 from #BTS #방탄소년단, he is the best dancer, singer and performer #Christmas_Love #Filter #Promise #Serendepity❤❤❤ #Lie Killing Part Prince
We care about your health 💕 @mtcarmody @tcddublin
Registerarbeidsdeskundige bij Het Arbeidsdeskundig Collectief, theater, cabaret, man van @Rubicon1000, koken, wijn, Verenigd Koninkrijk, narrowboats, Italië
*Temp breaks 4 health* used to do lots of things/less now/adjusting to new smaller world/ Feminist / love trees, sea, red dirt / lil sweary/ she/her/that bitch
I'm a disabled community builder and artist with ME (moderate/severe), MCAS, POTS, and probably a bunch of other stuff caused by a March 2020 COVID infection.
🕊️Bilingual (german, english.) #TeamKinderschutz #Teamscience #BringBackMasks #Covidisnotover
#MECFS #PEM #POTS #SFN #MECFSKids
