34. Queer autistic loner. Fangirler of many things. Wearer of fabulous earrings. Author of 'Queerly Autistic' and 'The Queerly Autistic Workbook'.
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- Following 1,032
- Followers 19,152
- Likes 69,339
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Not to be overly emotional on main, but there was a period of several years where I was genuinely convinced my book would never, ever be finished. I literally sobbed whilst drafting (and then deleting) 'giving up' emails to my publisher.
And now it's being published THIS WEEK 😭
ALT Selfie of me, a white woman in my mid 30s wearing a red hoodie, glasses, and noise cancelling headphones, holding a copy of The Queerly Autistic Workbook and beaming.
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Erin Ekins (she/her) retweeted
I think the source of a bunch of the discourse around ADHD is that a substantial portion of people do not have the ability to imagine that life inside someone else's head could be different and for whatever reason considering that possibility makes them irrationally angry
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Erin Ekins (she/her) retweeted
Crazy to me how many people are like "if you can't do x then you need help" when it comes to adhd and then don't make the connection that a lot of people are suffering because the help doesn't exist
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Erin Ekins (she/her) retweeted
I think a lot of NTs are totally unaware of how much work their brains do automatically in the background and how reliant on that background processing they are. It's like someone who has a team of butlers who thinks their laundry magically folds itself.
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Every time a 'but why don't autistic people have [useful thing] as their special interest?' tweet goes viral, I feel compelled to mention that my autistic special interest is literally British soap operas and there is no better evidence that special interests are involuntary.
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Erin Ekins (she/her) retweeted
curious that you refuse to acknowledge people like me who are chronically early because i get so fucking anxious i might forget or be late for something as a result of my adhd that i cant do anything except worry and feel nauseous until i get there
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Erin Ekins (she/her) retweeted
i hate how most ppl perceive ADHD, none of them care to think about how people that have it are twice as likely to have suicidal ideation compared to neurotypical people and three times more likely to develop an addiction but yeah sure lets treat it like it has no bearing on shit
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Erin Ekins (she/her) retweeted
most tired reaction to autism discourse.
like do autistic people whose special interest become athletes? no they don’t, it wouldn’t rid them of dyspraxia/motor issues. an autistic person could have a special interest in music & it wouldn’t fix their auditory sensory issues.
Why are there never autistic people where their “autistic obsessive special interest” is learning the norms of social behavior?
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Erin Ekins (she/her) retweeted
I'm going to respond to as many of these as possible b/c I think it's my duty as an ADHDer who has barely been late for anything in decades:
It. Is. Killing. Me.
Operating on y'all's NT bullshit punctuality economy is fucking KILLING ME. It is the primary driver of my anxiety.
The “time blindness” thing is funny to me as someone who’s severely disabled by mental health conditions bc if a symptom that was having a negative impact on my life had a cure as simple as “set alarms and leave earlier” I would be sooo grateful and I’d just do that and stfu.
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Erin Ekins (she/her) retweeted
People with ADHD who are functional are actually more insufferable than neurotypicals because they're like "I did it why can't you" and then list a host of supports and advantages they got from a young age or ignore that adhd has different severity levels lmao
Unlike the vast majority of these people who insist that ADHD renders you completely helpless, I was diagnosed with ADHD when I was 14, by a diagnostician, after a full day of neuropsych testing. I have 2 degrees, work full time, care for a 3 year old, a dog and a house by myself. I don’t miss work or doctors appointments and am rarely late. You are making this up because you don’t want to do anything to help yourself. Stop being a victim and making those of us who actually have ADHD look insane.
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Erin Ekins (she/her) retweeted
this is just a single silly moment but imagine this happens for everything you do all the time just constantly. not just with minor things but ur keys or documents or money, it’s exhausting having a brain that’s unreliable & this is just one of the ways adhd is in fact disabling
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Erin Ekins (she/her) retweeted
yes, people with adhd need to be building systems to better cope with how adhd impacts their lives but to assume that people arent already doing that and still struggling is to assume that everyone with adhd is a monolith and is impacted by the disability in the exact same way
As someone with ADHD who has literally never been late for work it really does feel like you guys are just using your disability as an excuse. Set alarms. Take responsibility for your own life.
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Erin Ekins (she/her) retweeted
This is why I dislike the repeated characterization of ADHD as making it so that you “can’t concentrate on something unless I like it/am interested in it” because yeah no my brain will also sabotage me doing things I want to do
Worse: Your ADHD makes you avoid playing games because it keeps telling you “time to do some work!” and it never happens so you just wasted another day literally doing nothing but SITTING
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Erin Ekins (she/her) retweeted
the entire post is from the team congo account on instagram
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Erin Ekins (she/her) retweeted
Ngl, autistic and ND dudes in general can be pretty terrible to autistic women too. Like a very common thing I see here is total denial that autistic women even exist.
You know the discourse going from "neurotypical women are generally vicious to autistic men" being met with "Autistic women have it hard too, neurotypical women are vicious to them" I'm starting to think that maybe theres a common denominator here that should be talked about
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Erin Ekins (she/her) retweeted
there's a point to be made about how this is very clearly talking about autistic kids, but there's also a broader thing happening where they're advocating for a generalized policing of difference to enforce homogeony, which is the root from which the hatred of autists stems.
It was a mistake to let the weird kids be weird. We must rejockinize. Force them to do sports. Tear the video games, train sets, and science sets from their hands. Eccentricity is only charming in small doses and in societies with strict manners.
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Erin Ekins (she/her) retweeted
1. ADHD & autism are not mental health illness but it can be a comorbidity
2. A diagnosis doesnt get you benefits. Ppl get a diagnosis to learn why they have struggled, this is not an incentive.
3. Work is not a health outcome.
The NHS & this gov are willing to worsen ppls lives
Exclusive from @benclatworthy
People with ADHD symptoms should not automatically be offered a formal diagnosis, a government review of mental health conditions will say
The review will recommend that patients are “triaged” under a “needs based” system that emphasises support over diagnostic labels.
It means NHS resources will be prioritised for those with the highest level of impairment from ADHD symptoms, such as those at risk of self-harm or unable to work.
Those with milder symptoms may not get referred to NHS clinics but should still be able to get “holistic” help if they don’t have a formal diagnosis, the report will say.
Children displaying restlessness at school, for example, could get extra one-on-one support regardless of whether they have any formal diagnoses of ADHD, autism or mental health problems
The review has been led by Professor Peter Fonagy, a leading psychoanalyst at University College London, and will warn that children and adults are currently “incentivised” to seek a diagnosis as it is the gateway to unlocking support - a finding of an interim review published in March
This means too many people spend years waiting for an ADHD assessment, with 800,000 currently on NHS waiting lists
thetimes.com/uk/healthcare/a…
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Erin Ekins (she/her) retweeted
Rationing ADHD diagnoses and treatment will cost the government far more money in the long run than simply diagnosing and providing treatment for every person with ADHD.
Exclusive from @benclatworthy
People with ADHD symptoms should not automatically be offered a formal diagnosis, a government review of mental health conditions will say
The review will recommend that patients are “triaged” under a “needs based” system that emphasises support over diagnostic labels.
It means NHS resources will be prioritised for those with the highest level of impairment from ADHD symptoms, such as those at risk of self-harm or unable to work.
Those with milder symptoms may not get referred to NHS clinics but should still be able to get “holistic” help if they don’t have a formal diagnosis, the report will say.
Children displaying restlessness at school, for example, could get extra one-on-one support regardless of whether they have any formal diagnoses of ADHD, autism or mental health problems
The review has been led by Professor Peter Fonagy, a leading psychoanalyst at University College London, and will warn that children and adults are currently “incentivised” to seek a diagnosis as it is the gateway to unlocking support - a finding of an interim review published in March
This means too many people spend years waiting for an ADHD assessment, with 800,000 currently on NHS waiting lists
thetimes.com/uk/healthcare/a…
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Erin Ekins (she/her) retweeted
Not having a PA, I was unaware on this, but my god, it's a travesty. And @DrFrancesRyan
hits the nail on the head with this:
"There’s an unwritten rule that says disabled people should be just grateful for what they’re given by the state, lest we appear to be scroungers or burdens. I say “unwritten”. It’s written in some newspapers most weeks."
theguardian.com/commentisfre…
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Erin Ekins (she/her) retweeted
Glad there is recognition of woeful health and social care failings, supporting our argument of social murder. The government knows and nothing is done to stop people dying prematurely. 1/2
NHS 'unable to treat and look after' people with learning disabilities, says care commission chair
The NHS is failing people with learning disabilities and hospitals are “unable to sufficiently treat and look after” them, says Baroness Louise Casey, the head of the government’s commission into adult social care, as ITV News Investigations Editor @DanielHewittITV reports
itv.com/news/2026-09-17/case…
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